International Niemann–Pick Disease Alliance

Care & Support

In this section we are pleased to share supportive resources that have been developed by patients and patient groups from across the world. You will also find links to each of the INPDA Member Groups, helping you to find the patient organisation closest to you. To add to this section please contact

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...