International Niemann–Pick Disease Alliance

Research & Clinical Trials

In this section you will find information to assist understanding of the different approaches and processes of research, clinical trial information, therapy development and research projects funded by INPDA member groups. To add to this section please contact

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...