International Niemann–Pick Disease Alliance

International Niemann Pick Disease Alliance – 6th Biennial “Face to Face” Meeting

International Niemann Pick Disease Alliance

6th Biennial “Face to Face” Meeting

14-16 June 2019


Radisson Blu Hotel Lyon

129 Rue Servient, 69003 Lyon, France


We are pleased to announce that the 6th Biennial INPDA Face-to-Face Meeting will take place 14th-16th June 2016 at the Radisson Blu Hotel in Lyon, France.  We would like to say a huge thank you to the Vancre les Maladies Lysosomales (VML) for hosting this meeting and providing organisational support.

This meeting encourages interaction between patient group leadership, clinicians, scientists and industry, with the aim of enhancing knowledge and awareness regarding all aspects of Niemann-Pick disease (NPD).

The meeting provides an opportunity to hear about progress first hand, from those involved in the development and delivery of research and clinical trials, including leading experts in the scientific and clinical fields of NPD as well as the opportunity to meet representatives of global patient advocacy groups and to share experiences and ideas.

The INPDA was founded in 2009 and now has 18 member groups in 15 countries. This meeting helps to achieve our aims to facilitate progress in the fields of patient care and research, to encourage effective use of resources, to minimise duplication and encourage collaboration.

As previous meetings, you can expect to hear the latest developments for ASMD Niemann-Pick disease and Niemann-Pick type C. This will include updates on research, current and future clinical trials and key INPDA projects plus much more.


How do I register to attend the meeting?

The meeting is open to INPDA member associations and invited guests only.  For further information, please contact


Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...