International Niemann–Pick Disease Alliance

What is the International Niemann-Pick Disease Registry (INPDR)?

In the following video INPDA President and Former NPUK Trustee Jim Green defines what exactly the International Niemann-Pick Disease Registry (INPDR) is, and why it is needed: “…the International Niemann-Pick Disease Registry aims to collect data about the disease with the view to facilitating progress…”

You can learn more about the INPDR at: http://www.inpdr.org

Shared courtesy of Niemann-Pick UK (NPUK)

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