International Niemann–Pick Disease Alliance
In the following video INPDA President and Former NPUK Trustee Jim Green defines what exactly the International Niemann-Pick Disease Registry (INPDR) is, and why it is needed: “…the International Niemann-Pick Disease Registry aims to collect data about the disease with the view to facilitating progress…”
You can learn more about the INPDR at: http://www.inpdr.org
Shared courtesy of Niemann-Pick UK (NPUK)