International Niemann–Pick Disease Alliance

Introducing the INPDR Facebook Page!

We are happy to introduce the International Niemann-Pick Disease Registry (INPDR)’s official Facebook page – which will provide any and all relevant updates pertaining to the INPDR. 

But, what is the INPDR? The INPDR is a unifying force that has the power to increase knowledge and understanding of Niemann-Pick Diseases (NPD) through the collection of much-needed patient data on a global scale. By enabling appropriate data, the INPDR will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts.

The INPDR is a not for profit, registered company based in the UK. It is a subsidiary of the INPDA, and has an independent Board of Directors. This initiative encourages global collaboration between patient groups, clinicians, scientists and researchers, all of whom wish to improve care and treatment options for NPD patients everywhere.

Make sure you ‘Like’ the INPDR Facebook page in order to never miss an update, please click here

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...