International Niemann–Pick Disease Alliance
There is so much going on as of late; with various clinical trials beginning and/or expanding, new companies joining the fight against Niemann-Pick disease (Perlara and Novartis), and the partnership of Quinn Madeline and Baby Genes in order to create the first diagnostic carrier screening program for at-risk individuals…there is a lot to be excited about!
Add to all of this that INPDA President Jim Green is currently on his way to attend the CNPDA Communication Meeting in Beijing, China – and you have an incredibly positive time for the Niemann-Pick global community. The meeting takes place from November 4th to 6th November, and Jim is looking forward to speaking with meeting the families there and speaking to all of those who support the CNPDA.
We are a global community, and together we are stronger!