International Niemann–Pick Disease Alliance


We are proud to present the INPDA International Niemann-Pick Disease Alliance Newsletter, which serves as a way to present exciting and informative updates from each one of our member groups, in a dynamic format.

INPDA President, Sandy Cowie writes: “…this newsletter will serve as a communication tool for all of the members of the INPDA, to share information and updates. It will be released in an electronic format 3 times per year which allows for each edition to be full of news which will likely be of interest to the global Niemann-Pick community. We hope you enjoy it…”

To subscribe to the INPDA Newsletter, and ensure you never miss an update, please contact Sarah Jannetta at

You can view previous editions at the links below:

INPDA Newsletter – February 2024

INPDA Newsletter – October 2023

INPDA Newsletter – June 2023

INPDA Newsletter – February 2023

INPDA Newsletter – October 2022

INPDA Newsletter- June 2022

INPDA Newsletter – February 2022

INPDA Newsletter – October 2021

INPDA Newsletter – June 2021

INPDA Newsletter – February 2021

INPDA Newsletter – October 2020

INPDA Newsletter – June 2020

INPDA Newsletter – February 2020

INPDA Newsletter – October 2019

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