International Niemann–Pick Disease Alliance
The INPDA’s overall mission is to assist, connect and support families affected by Niemann Pick Disease worldwide. To achieve this, our strategy focuses on three key areas: the provision of mutual support between patient groups; the development of information; the stimulation of relevant research. See below for examples of our work.
Collectively, INPDA members represent the majority of known NPD patients across world. Our network brings people together, sharing information and ideas with the aim of accelerating progress in the field of Niemann-Pick diseases. To achieve our aims and objectives, we encourage effective collaboration and the sharing of ideas across patient groups, clinical and scientific academia and the pharmaceutical industry. We provide a forum that enables networking on a global scale, reducing overlap and maximising resources.
INPDA representatives are regarded as experts in their field; they are regularly consulted regarding clinical research and trials, are involved in high level advisory boards and are invited to speak at international events and conferences.