International Niemann–Pick Disease Alliance


The information provided via this website is intended for general educational and informative purposes only. It is not intended as a substitute to medical or professional services nor should it replace the relationship that exists between patients, their physicians and other health care providers.

The information provided should in no way be relied upon for treatment choices or as a replacement to any information given to you by your healthcare professional team.  It is highly recommend that the appropriateness of different treatment options be discussed with your healthcare professional team in order to assess suitability and potential use.

Whilst the INPDA will take every care to ensure that the content is correct, appropriate and up to date, we will accept no responsibility or liability for any loss or damages arising out of, or in connection to, the contents or the use of the information or links provided.

The INPDA does not advocate any specific medical product or treatment.  No action, treatment, independent entities or persons are endorsed and all information is provided without warranty.  Similarly, we take no responsibility for the quality or accuracy of information provided via links to external websites and resources operated by third parties; the inclusion of such links/resources does not imply an endorsement of the products/views expressed.

The logo of the INPDA is our property and must not be copied, reproduced or displayed without our prior written permission.  Furthermore, no part of our website may be copied, reproduced or displayed without our express permission.

The INPDA is a charity registered with the Charity Commission in England and wales No: 1150256 and company limited by guarantee in England & Wales No. 08287609 registered address: Suite 2, Vermont House, Concord, Washington, Tyne and Wear, NE37 2SQ, UK

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The Impact of NPC

The global community tell their stories...