International Niemann–Pick Disease Alliance

Get Involved!

How you can help

INPDA Who are we Susan and ToniWe’d love to hear from you in you’d like to join our alliance, help promote our work, become a sponsor, learn more about NPD or make a donation. There are many individuals, organisations and institutes working across the world to improve the lives of people living with NPD, we’d love to hear about your work too!

Please do contact us and help make a difference for families worldwide suffering from NPD.

Donate now

To make a much appreciated donation, use the following link to the INPDA’s Virgin Money Giving page, a free-to-use online giving service, which you can find by clicking here. 

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...