International Niemann–Pick Disease Alliance

NPC Listening Session Aug 3 Report

We are pleased to share the following Niemann-Pick Type C Community Listening Session with the U.S. Food and Drug Administration (FDA), which was originally held on August 3rd 2021. The meeting arranged and the subsequent report prepared in a collaboration between the Ara Parseghian Medical Research Fund, International Niemann-Pick Disease Alliance, and the National Niemann-Pick Disease Foundation:

 

NPC-Listening-Session-Aug-3-ReportPatient-Voices

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