International Niemann–Pick Disease Alliance

Updates

  1. CTD Holdings Receives FDA Fast Track Designation for Development of Trappsol® Cyclo™ to Treat Niemann-Pick Disease Type C

    ALACHUA, FL — (Marketwired) – 1/17/17 — CTD Holdings, Inc. (OTCQB: CTDH), a clinical-stage biotechnology company that develops cyclodextrin-based products for the treatment of disease, today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track...

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  2. Wylder Nation link with Perlara

    The Wylder Nation Foundation, which seeks treatment for acid sphingomyelinase deficiency (ASMD) NPD type A, has partnered with biotech company Perlara: Perlara PBC, a company with a focus on ‘finding treatments for rare diseases previously believed to be too...

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  3. Perlara PBC Announces Patient Advocacy Group Partnerships

    Perlara PBC Announces Patient Advocacy Group Partnerships – News Press Release | PharmiWeb.com SAN FRANCISCO, Jan. 10, 2017 /PRNewswire/ — Perlara PBC, a global patient portal and drug discovery platform company for the 1 in 10 families affected by...

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  4. ASMD NP-B Enzyme Therapy: Luiz Henrique

    Just last week we happily reported that three year old Isadora, had became the first patient of her age to receive enzyme therapy for ASMD Niemann-Pick disease type B. This tremendous news filled everyone connected to the INPDA with a sense...

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  5. Orphazyme: Update #12 on the AIDNPC Clinical Programme

    Update #12 on the AIDNPC clinical programme (arimoclomol in treatment of Niemann-Pick disease type C)  (Available for download in English, French, German, Italian, Polish, Spanish) Conference call with patient organizations (22 DECEMBER ’16) SUMMARY 002 Study: Recruitment into the...

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  6. The First Three Year Old Patient to Receive Enzyme Therapy for Niemann-Pick Type B

    A constant smile and strong personality are just two traits of Isadora, a Brazilian girl who has became the first three year old in the world to receive enzyme therapy for Niemann-Pick type B disease. Upon hearing this news...

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  7. CTD Holdings Files Clinical Trial Application with Italian Drug Agency to Continue Advancing Trappsol(R) Cyclo(TM) Drug Development Program to Treat Niemann-Pick Disease Type C

    Marketwired Dec 21, 2016 8:00 AM ALACHUA, FL–(Marketwired – December 21, 2016) – CTD Holdings, Inc.(CTDH), a clinical-stage biotechnology company that develops cyclodextrin-based products for the treatment of disease, today announced its filing of a Clinical Trial Application (CTA) with...

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  8. Sanofi Genzyme: Pivotal Phase 2/3 Trial of Olipudase Alfa for Adult Patients with Acid Sphingomyelinase Deficiency to Begin in the UK

    Pivotal Phase 2/3 Trial of Olipudase Alfa for Adult Patients with Acid Sphingomyelinase Deficiency (Niemann-Pick Disease Type B) to Begin in the UK  Oxford, UK – 3 November, 2016 – Sanofi Genzyme, the specialty care global business unit of...

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  9. Jim Green: CNPDA Visit

    There is so much going on as of late; with various clinical trials beginning and/or expanding, new companies joining the fight against Niemann-Pick disease (Perlara and Novartis), and the partnership of Quinn Madeline and Baby Genes in order to create the first diagnostic carrier...

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  10. Clinical Trial Update: Orphazyme expands NPC study to three sites in the USA

    Clinical Trial Update: Orphazyme expands NPC study to three sites in the USA ( Download Here) Orphazyme’s clinical programme AIDNPC, investigating the orally administered small molecule arimoclomol as a treatment for Niemann-Pick disease type C, is close to opening...

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