International Niemann–Pick Disease Alliance

Active studies that are enrolling patients

Disease Study Drug Route Sponsor Trial Name Sites Enrolling Patients ClinicalTrials.gov Ref. No. Contact for Enrollment Questions
Niemann Pick Type C Nizubaglustat/
AZ-3102/
oral Azafaros A Study to Evaluate the Safety and Efficacy of Oral Nizubaglustat (AZ-3102) in Late-infantile and Juvenile Forms of Niemann-Pick Type C Disease (NPC) 30 clinical trial sites including: Argentina, Australia, Brazil, Canada, Germany, India, Italy, Portugal, Spain, Switzerland, Turkiye, United Kingdom, USA NCT07082725 info@azafaros.com
http://www.navigate@azafaros.com

Further resources to understand clinical trials and drug development:

What patients need to know about clinical trials – resource from the FDA https://www.fda.gov/patients/clinical-trials-what-patients-need-know/basics-about-clinical-trials

The drug development process – resource from the FDA https://www.fda.gov/patients/learn-about-drug-and-device-approvals/drug-development-process

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Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...