International Niemann–Pick Disease Alliance

About Niemann-Pick Disease

In the following section, you will find detailed information relating to ASMD Niemann-Pick disease type A and B, and Niemann-Pick disease type C. This information has been developed by patient groups from across the world and, with permission, may be adapted for use within your own patient community. Please contact if you wish to adapt information for your own use or if you wish to add to this section.

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...