International Niemann–Pick Disease Alliance

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Information portal

Reports:

Think NP-C, Talk NP-C:

Think NP-C. Talk NP-C – Ataxia

Think NP-C. Talk NP-C – Dysarthria

Think NP-C. Talk NP-C – Gelastic Cataplexy

Think NP-C. Talk NP-C – Hepatosplenomegaly

Think NP-C. Talk NP-C – Organic Psychosis

Think NP-C. Talk NP-C – Vertical Supranuclear Gaze Palsy

 

A Guide to the Recognition and Referral of Niemann-Pick type C Disease:

Intrathecal 2-hydroxypropyl-β-cyclodextrin decreases
neurological disease progression in Niemann-Pick disease,
type C1: a non-randomised, open-label, phase 1–2 trial

Think Again. Think NP-C Educational Slide Deck

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

The Impact of NPC

The global community tell their stories...