International Niemann–Pick Disease Alliance

Expanded Access Progams/Compassionate Use programs

Disease Drug Route Sponsor Locations
Niemann-Pick C Arimoclomol oral Zevra United States, some European countries
Niemann-Pick C Adrabetadex intrathecal Mandos United States only

Further resources to understand clinical trials and drug development:

What patients need to know about clinical trials – resource from the FDA https://www.fda.gov/patients/clinical-trials-what-patients-need-know/basics-about-clinical-trials

The drug development process – resource from the FDA https://www.fda.gov/patients/learn-about-drug-and-device-approvals/drug-development-process

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The Impact of NPC

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