International Niemann–Pick Disease Alliance

Patient Perspectives

The following publications were written by parents David and Sally Wray. David and Sally’s son Andrew (11/07/1991–29/08/2000), was affected by Niemann-Pick type C. They decided to share their valuable experience of the disease to further understanding and knowledge of the effect such a diagnosis can have on the child and family. David and Sally candidly offer their thoughts, advice and experiences in the hope that their contribution will lead to improvements for other families coping with Niemann-Pick diseases:

Patient Perspectives:

Parent’s Perspectives:

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